Monday March 18, 2013

Ariella has been home for a week and as a family we are slowly starting to get our feet underneath us and get acclimated to having our little warrior at home all the time. We have been blessed to have some very skilled and compassionate nurses working with our baby while we are at work during the day and overnight a couple of nights a week so we are able to sleep. Though the schedule is still being tweaked we are grateful to have the support that we have. Our baby has been slowly adjusting to life at home. We have noticed that in particular for the last several days she's had increased secretions and required more suctioning than usual. At this point we are not concerned that it is anything more than just Ella getting used to being back home. Prayerfully in another couple of days her secretions will reduce and we won't have to suctioned her as much. That aside we are so blessed to have our dear Ella back home.

So adjusting to life with our baby is one thing, at the same time we are also working hard to accommodate all the additional equipment and supplies that are needed in order to support Ella's treatments and continued growth. Rachel likes to describe the babies nursery as a mini ICU. Now we have to find a place for all of the additional equipment, inventory of supplies and medications that support our little warriors progress.

We pray and look forward to the day where it won't take so much to keep her stable, but until that day we are so grateful to our God for utilizing the generosity of each and everyone of you and as well as the City of Hartford and Anthem Blue Cross Blue Shield in helping us to ensure that Ariella has everything that she needs to continue to grow big and strong. She continues to be a very good baby only complaining when she is uncomfortable or when we are suctioning her, which is more than understandable. Her eyes are still full of so much joy in life our home is full of more life because she's in it all the time.