Friday March 22, 2013

As the week draws to a close we have made progress in some areas and continue to face challenges in others. We have one more week under our belt, which means one more week to get acclimated to our preciosa being home and adjusting to our new routine. Life at casa de Botts is still pretty topsy turvy though. At the beginning of the week we thought we had full nursing coverage during the week so Rachel and I could continue to work. However, we learned half way through the week one of our weekday nurses decided not to take our baby's case leaving us with a gap in care. Having said that, because our God is so good and never leaves us nor forsakes us; one of the other nurses, our friend Donna from CCMC, happen to not be working at the hospital the day we needed coverage this week and she is also available to help us out next week as well. So at least for next week we are covered, however the agency still needs to find someone willing to work with our baby every Thursday during the day so we can work. We trust that God will fill the gap.

HILARIOUS!

 

As we work to try and lock down our nursing schedule, which ultimately determines our overall schedule, we still need to make room for Ella's supplies and come up with an organized way or storing, accessing and reordering everything that baby girl needs. There are a lot of pieces to her equipment, some of it needs to be changed on a daily basis; for example her food bag, which is run through her feeding pump. Some of the equipment is changed on a weekly basis, like the circuits on the ventilator. While still other components needs to be washed and cleaned out regularly like the canister and tubing on the suction machine. Fortunately Ariella's mother happens to be one of the world's foremost experts on developing systems that promot efficiency and organization for a specific outcome. Rachel is amazing. Two years ago she developed a two year plan to help us get out of significant credit card debt. Because of her meticulous attention to detail and our commitment to the plan we actually finished ahead of schedule. If anyone can develop a plan to capture and reorder all of the necessary pieces to Ariella's machinery for her treatments its my Rachel.