Save the Date

A purely discretionary fund has been set-up to help provide for Ariella's long term care. We are organizing a pasta dinner fund raiser scheduled for April 6, 2013. The proceeds of the dinner will be invested in Ariella's trust. Your investment will provide for -

1. Essential therapies to encourage muscle growth and development
2. Medical equipment to help with my mobility and life support
3. Research on my on the development of nemaline rod in general and my particular form of the disease specifically

More details are forthcoming, but please save this date. It will be held at St. Mary Czestochowa Church 79 South Main Street, Middletown, CT 06457; time to be announced. Additionally, if you know of any businesses that would be willing to donate items to be used in a silent auction that would be fantastic. Gift cards, discounts and the like would all be welcome donations. Please feel free to leave comments and questions on the blog.

Your investment could save Ella's life and many others.