So in addition to all the great progress Ariela has made over the last week, she also took time to plan a surprise party for her brother. Charles is a teenager now and turned the big 13. Ella was very excited to have the opportunity to decorate her room and celebrate her brother's birthday. It was that much more special becuase Charles got to take a walk with his younger brother and sister through the hospital floor.
In addition to planning a surprise party, Ella has also been doing very well with her therapies and rehab. In fact Ella has successfully completed 4 separate trials of being completely off the ventilator. This is called a trach mask trial. During theas trials Ella has had increased secretions, which is normal, but still a little nerve racking. Other than some coughing and more secretions she has passed with flying colors.
Though Ella's muscles continue to get stronger we are struggling with her feeds. She has had a couple episodes of vomiting and her stomach is not emptying very quickly. The doctors here are trying a couple of different things to help maintain her nutrition and also speed up the process of emptying her stomach. This was a problem at Yale while we were in intensive care as well. For now she is doing ok, but this maybe something that we have to address after we are back home.
Every day that Ella does well is a day closer to being released and sent home. Keep praying, we are all more than conquerors.
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