Ella's update - February 19, 2016

Hello Team Ariella. We are in full rehab and training mode. Ariella is seen by an occupational therapist and a physical therapist everyday in addition to lots of play and activity with her respiratory therapists and nurses. Meanwhile mom and dad are learning trach care and will be trained very soon on how to operate and maintain her new ventilator. 

Training is going well and things are moving along in fact dad did his first trach change earlier today. The procedure went quite smoothly  however our angel continues to have stomach problems and immediately following the trach change because she was so upset and anxious she ended up vomiting all of her morning feed. This was a bit of a concern for the doctors given that at the time of the train change  her feed been finished for almost two hours. There should not have been nearly as much formula in her stomach as what she threw up. The doctors are thinking that it may be taking her too long to digest the formula she's receiving in its current concentration. She is currently on Pedialyte and the doctors decided to dilute the concentration of formula she is getting in her feed in the hopes that they can settle her stomach over the weekend and have her evaluated by their dietitian on Monday. In the mean time her energy and spirits continue to pick up and get stronger with each day. She had a special visit with two of Daddy's friends from his job Auntie Jen and Auntie Melinda played the cupcake game with Ella.


In terms of discharge at this point it is still premature to get a sense for when exactly we will be able to come home, but everyone has been pleased with how mom and dad's training has progressed to this point. We get the feeling that our stay may not extend beyond a week. Continue to pray. We are all more than conquerors.

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