Peace and blessings team more than a conqueror today has been a good day. Ariella has spent the entire day on decreased pressure support through her ventilator and has shown that she can withstand the decreased support. In addition to the decrease ventilator settings Ella also maintained her daily regime of rigorous respiratory treatment every 2 hours and a 40-minute physical therapy session. In spite of how busy her day was Ella showed continued signs of improved health and strength. The doctors will make 1 more reduction in her pressure support overnight. If she tolerates this final reduction in support the endotracheal tube will be removed tomorrow. Once the tube comes out the real work for our angel begins. She will have to show that she can sustain herself without the invasive breathing tube. The tentative plan is to give her 24 hours on her regular breathing mask with increased support from the ventilator. If she tolerate the new pressures on her breathing mask the doctors will begin to give her trials off of the mask to see how long she can sustain herself without a collapse in her lungs. Tomorrow and the rest of the weekend will be a crucial time for our family. Thanks to the amazing church family to which we belong at Faith Tabernacle we will be looking to officially move this weekend while our baby proves that she can live without a breathing tube.
As you are praying for Ella we would also like you to pray for one of her special friends Franny. We met Franny and her family as part of an annual gathering Manhattan for families living with nemaline myopathy. Franny is a beautiful young woman as you can see and has been fighting very hard to maintain herself off of a ventilator and thrive after a significant illness. She is in a very similar situation as Ariella, however her family has decided to proceed with a tracheostomy. For Franny and her family this is a decision that they have come to in the best interest of their household this is not something they feel forced into. In fact in many ways a successful tracheostomy will be the light at the end of a long tunnel. Please keep Franny and her family in your prayers as you pray for ours. We are all more than conquerors.
Peace and blessings team more than a conqueror today has been a good day. Ariella has spent the entire day on decreased pressure support through her ventilator and has shown that she can withstand the decreased support. In addition to the decrease ventilator settings Ella also maintained her daily regime of rigorous respiratory treatment every 2 hours and a 40-minute physical therapy session. In spite of how busy her day was Ella showed continued signs of improved health and strength. The doctors will make 1 more reduction in her pressure support overnight. If she tolerates this final reduction in support the endotracheal tube will be removed tomorrow. Once the tube comes out the real work for our angel begins. She will have to show that she can sustain herself without the invasive breathing tube. The tentative plan is to give her 24 hours on her regular breathing mask with increased support from the ventilator. If she tolerate the new pressures on her breathing mask the doctors will begin to give her trials off of the mask to see how long she can sustain herself without a collapse in her lungs. Tomorrow and the rest of the weekend will be a crucial time for our family. Thanks to the amazing church family to which we belong at Faith Tabernacle we will be looking to officially move this weekend while our baby proves that she can live without a breathing tube. 
As you are praying for Ella we would also like you to pray for one of her special friends Franny. We met Franny and her family as part of an annual gathering Manhattan for families living with nemaline myopathy. Franny is a beautiful young woman as you can see and has been fighting very hard to maintain herself off of a ventilator and thrive after a significant illness. She is in a very similar situation as Ariella, however her family has decided to proceed with a tracheostomy. For Franny and her family this is a decision that they have come to in the best interest of their household this is not something they feel forced into. In fact in many ways a successful tracheostomy will be the light at the end of a long tunnel. Please keep Franny and her family in your prayers as you pray for ours. We are all more than conquerors.
No comments:
Post a Comment